Alexander and Daniel Taravella of Belle Chasse, pictured with their mother Julia, have been diagnosed with AGU, a rare and terminal genetic disease.

5K to benefit Rare Trait Fund

By Aleia Trufant

 

Daniel and Alex Taravella are two residents in the Belle Chasse community and they need your help. These boys started off as healthy toddlers, but then they gradually began to decline. Doctors diagnosed both brothers with ADHD, but the Taravella family continued to work with their sons to ensure that they could become normal kids. However, they began to fall behind. In May 2012, after misdiagnosis and research, the family found that their kids suffered from a rare fatal genetic disorder called Aspartylglucosaminuria (AGU). This disease slows down a child’s development.
 
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Plaquemines Gazette

7962 Hwy 23
P.O. Box 700
Belle Chasse, LA 70037
Phone: 504-392-1619
Fax: 504-392-7526