5K to benefit Rare Trait Fund
Tue, 2014/03/25 - 12:53pm News Staff
By Aleia Trufant
Daniel and Alex Taravella are two residents in the Belle Chasse community and they need your help. These boys started off as healthy toddlers, but then they gradually began to decline. Doctors diagnosed both brothers with ADHD, but the Taravella family continued to work with their sons to ensure that they could become normal kids. However, they began to fall behind. In May 2012, after misdiagnosis and research, the family found that their kids suffered from a rare fatal genetic disorder called Aspartylglucosaminuria (AGU). This disease slows down a child’s development.
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